Wednesday, November 02, 2005















This blog is devoted to Aaron, our son, now 2 years old.

Aaron is developmentally delayed and we are now in the process of trying to learn why.

There may be no 'why.'

Aaron loves bouncing and tickling and playing with his big sister. He has discovered board books and petting the dog. He pushes toy cars around and enjoys playing in sand. When I come home from work, his hug stops time.

And he wobbles when he walks, falls alot, doesn't speak a word. He battles to control his emotions and often sleeps fitfully. The Experts say he is at least 9 months delayed in every developmental area.

Last month we met with one Expert, a developmental pediatrician whose is known and respected in his field. He brought up a range of possibilities that left us distraught, devastated. He failed to balance the discussion with a more optimistic possible outcome -- that the delays could be just delays, that might be overcome with early intervention.

That early intervention has begun. Aaron now sees two wonderful therapists, a physical therapist and an occupational therapist who specializes in sensory integration issues. They seem to understand him better than the Experts.

But the Experts want tests and more tests. Neurological, genetic. Blood work and MRIs. And we've been warned that if -- in the best case -- the tests reveal nothing, they will propose more testing.

Aaron's mom and I are in a new world with all this, a confusing world. Our emotions are unsteady, pegged in large part by what kind of day Aaron himself is having.

So I start this blog in part to try to sort through the confusion, as we begin a journey toward understanding Aaron.

2 Comments:

Blogger tylertoo said...

Thanks, Cliff. Though we're distraught, no grieving is necessary -- we are still hopeful these delays will be nothing more than that, will work themselves out over time and with therapy.

12:15 PM  
Blogger Jenni said...

Nope, no grieving. Lots of thankfulness tho. Your Aaron has a lot of hope. He shares the same name as my 6 year old nephew. Other than that all I want to mention is that my best friend from high school has a severly autistic 8 year old. He can not speak and is very hyper and destructive. I have often told them that I admire their patience. I'm sure your patience will grow as Aaron does.

12:15 PM  

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